#NavigatingHealth

🎄✨ From all of the Patvocates and European Patient Advocacy Institute #team to you, here’s a little holiday cheer 🎁! We had a blast making this and hope it brings you just as much joy and laughter. Season’s Greetings and have a Wonderful New Year!!!🎅🎶 (🔉On!) #HappyHolidays #NewYear

interested in patient-centred impact? What started out as a local project in 2021 focused on systems change to improve navigating health care for individuals has expanded over 4 years. As we head into 2025 we'd love you to get involved whether you're an individual or investor - or both! We can't do it alone ... and this affects everyone. with thanks to WEST MELBOURNE STUDIOS with Heather Renton Kirstie Edwards Geraldine McDonald Rose Capp Lena Sanci Assoc Professor Ralph Hampson Linny Kimly Phuong Patrick Finlayson Nossal Institute for Global Health, University of Melbourne https://lnkd.in/gNm-rsjY

Here is our (Silvia Goss, @Isabel Hope and Mala Mann) new publication exploring key the information and communication needs of patients with advanced incurable cancer and their caregivers. Holland-Hart, D., Goss, S., Hope, I. and Mann, M. 2023. The information and communication needs of patients with advanced incurable cancer: A rapid review. Patient Education and Counseling, 2015. 131, ISSN 0738-3991, https://lnkd.in/epwSeMSb.

Big news! We're thrilled to announce our £6M Series A investment round! Led by Par Equity, and joined by Mercia Ventures, British Business Bank North of England (Northern Powerhouse Investment Fund I), Octopus Ventures, Calm/Storm, Conduit Connect, and our angel investors. This funding is a huge milestone in our mission to change the future of paediatric care through personalised preparation and psychological support for families. This investment enables us to scale our global operations and continue innovating our platform to support even more children, families, clinical trials, and hospitals ✨ A massive thank you to our investors, partners, and the families who inspire us daily. Together, we’re building a brighter, healthier future for children across the globe. Learn more about what's next for Little Journey Read the full press release in the comments 📖 #SeriesA #Paediatrics #Pediatric #HealthTech #Innovation

Here’s a sneak peek of our new animation for healthcare professionals, giving a quick overview of Usher syndrome - a rare genetic condition affecting both vision and hearing. Watch the full video on our YouTube channel here: https://lnkd.in/ez2zMHeP Don't forget to share to spread awareness! #UsherSyndrome #RareDisease #Healthcare #HCPs #RareIs #Healthcare #LearnAboutUSH #HealthcareProviders #HealthcareProfessionals #Awareness #USHAwareness  @Amgen @RareIs Video description: Animation opens with two healthcare workers, one of whom begins narrating, accompanied by on-screen text. The video then cuts to a still with the message: 'Watch the full video on our YouTube channel @ UsherSyndromeIreland.'

Knee osteoarthritis is a common cause of knee pain and disability among adults. This JAMA Patient Page describes knee osteoarthritis and its symptoms, diagnosis, and treatments. https://ja.ma/4hPo9VY

"The consortium has proven its ability to collaborate internally and externally in a complex, dynamic field, and their rather early career stage/younger age taken into consideration, this is particularly impressive and promising for their future careers and contribution to the field." (European Commission) The quote above is from the final review report on our project #CANCERLESS that I recieved a few days ago from the #EuropeanCommission. CANCERLESS was a Horizon 2020 financed project looking into #cancer #prevention of people experiencing #homelessness. While CANCERLESS was not my first "larger" grant, it was my first grant of a few million Euros and I felt enormous pressure. The process was not easy, not only did we start the project during #COVID #lockdowns, but also had communication and technical issues, issues with #recrutment, dealing with years of #mistrust in the communities...but we pulled it off. I am also very happy that the #EuropeanCommission also noted our "younger age" and felt that this was not a weakness but a show of promise for our future career development and contributions to our field. This is especially important within academia, where very often we are told to "wait our turn". Thank you CANCERLESS Consortium and everyone who supported us! Medical University of Vienna - Michaela Fritz Anglia Ruskin University Prolepsis Institute PRAKSIS Kveloce FEANTSA International Foundation for Integrated Care (IFIC) Universitat Politècnica de València (UPV) HORIZON-MISS- CANCER. CO-CAPTAIN-FIIBAP (Madrid) #DGSSIS Instituto de investigación Polibienestar (UV) #CCCVienna AmberMed