Pulmonary Hypertension Knowledge Sharing Platform

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WINREVAIR met primary endpoint of time to first morbidity or mortality event for the treatment of patients with pulmonary arterial hypertension (PAH) functional class III or IV at high risk of mortality. This data is from the interim analysis of the Phase 3 ZENITH trial. WINREVAIR is currently approved for PAH patients in functional class II and III. #pulmonaryhypertension #pulmonaryarterialhypertension #PAH #chronicthromboembolicpulmonaryhypertension #CTEPH #knowledgesharing #knowledgeexchange #patientempowerment #patienteducation #allianceforph #organtransplant #organdonation #transplant #lungtransplant HTaPFrance Stichting Pulmonale Hypertensie / PH Association the Netherlands PH Belgium - Pulmonale Hypertensie vzw AIPI Italian Pulmonary Hypertension Association Pulmoner Hipertansiyon ve Skleroderma Hasta Dernegi Hellenic Community for Pulmonary Hypertension Pulmonale Hypertonie E.V. Ieva Plume PHA Polska PHA Japan Alliance for Pulmonary Hypertension Pulmonary Hypertension Knowledge Sharing Platform Merck https://lnkd.in/eYjY9a-7

According to a recent article published on The AJMC - The American Journal of Managed Care women remain underrepresented in heart disease trials, thus affecting the generalizability of findings due to sex-based differences.  This can result in treatments that did not fully account for sex-specific variations in heart disease (summary by Deger Kesimoglu) Read more on the Pulmonary Hypertension Knowledge Sharing Platform at https://lnkd.in/d9grgyuC #pulmonaryhypertension #pulmonaryarterialhypertension #PAH #chronicthromboembolicpulmonaryhypertension #CTEPH #knowledgesharing #knowledgeexchange #patientempowerment #patienteducation #allianceforph #organtransplant #organdonation #transplant #lungtransplant HTaPFrance Stichting Pulmonale Hypertensie / PH Association the Netherlands PH Belgium - Pulmonale Hypertensie vzw AIPI Italian Pulmonary Hypertension Association Pulmoner Hipertansiyon ve Skleroderma Hasta Dernegi Hellenic Community for Pulmonary Hypertension Pulmonale Hypertonie E.V. Ieva Plume PHA Polska PHA Japan Alliance for Pulmonary Hypertension

Mark the date for a live webinar organised by the American Thoracic Society on November 25, 2024, where Divya Verma, MD from Emory University will present the article titled "Contemporary Treatment of Pulmonary Arterial Hypertension: A U.S. Perspective”, published in the American Journal of Respiratory Critical Care, in the presence of the authors Sandeep Sahay, MD, MSc Sahay, MD, ATSF (Houston Methodist), Murali Chakinala, MD (Washington University) and Ioana Preston, MD (Tufts University) Discussion Panelists: Jim White, MD, PhD (Rochester University) Mardi Gomberg-Maitland, MD, MSc (George Washington University). Register at: https://lnkd.in/dN4zjjgX

The official Rare Disease Day 2025 video is now out and - as always - it is very inspiring and touching. This annual observance, established by EURORDIS-Rare Diseases Europe in 2008, is very relevant to our patients as the main focus of the activities of the Alliance for Pulmonary Hypertension and its Pulmonary Hypertension Knowledge Sharing Platform is on the rare forms of pulmonary hypertension, ie pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH). We are planning to join the rare disease community on 28 February 2025 to raise awareness for the 300+ patients in Europe affected by a rare disease. Together, we can do more!

Learn more about HTaPFrance, the French pulmonary hypertension (PH) association, in this excellent slide show. HTaPFrance was the first PH patient association to be set up in Europe in 1996, together with the German PH association ph e.v.. The only other existing PH association at the time was the Pulmonary Hypertension Association US, founded in 1991. Today, HTaPFrance is one of the world's leading PH associations in terms of the scope and breadth of its activities to inform and support patients and their families and advocate for their rights, covering all forms of PH as well as lung and heart-lung transplantation. The Alliance for Pulmonary Hypertension is proud to have HTaPFrance as one of its founding members. Find out more about the rise of the PH patient association movement by listening to the Alliance for Pulmonary Hypertension live webinar of December 2023 at this link: https://lnkd.in/dK_qf_Ci #pulmonaryhypertension #pulmonaryarterialhypertension #PAH #chronicthromboembolicpulmonaryhypertension #CTEPH #knowledgesharing #knowledgeexchange #patientempowerment #patienteducation #allianceforph #organtransplant #organdonation #transplant #lungtransplant HTaPFrance Stichting Pulmonale Hypertensie / PH Association the Netherlands PH Belgium - Pulmonale Hypertensie vzw AIPI Italian Pulmonary Hypertension Association Pulmoner Hipertansiyon ve Skleroderma Hasta Dernegi Hellenic Community for Pulmonary Hypertension Pulmonale Hypertonie E.V. Ieva Plume PHA Polska PHA Japan Pulmonary Hypertension Knowledge Sharing Platform

Supporting people affected by #PulmonaryHypertension is at the heart of what we do, so we're proud today to be launching our new self-help intervention for those who struggle with depression or low mood. Developed in collaboration with psychologists, it's the world's first intervention specifically for those with PH who have problems in this area. The four-week programme consists of a series of workbooks based on Cognitive Behavioural Therapy (CBT) to help people change their thinking habits and behaviours. The programme has been tested with people with PH as part of a controlled study, and 87% rated it ‘excellent’ or ‘good’. Find out more at https://lnkd.in/eXut9u4C

November 20 is Chronic Obstructive Pulmonary Disease Day (COPD)! COPD affects 391 million people worldwide—that’s equivalent to the population of 47 New York Cities 44 Londons, 10 Tokyos, or 28 Rio De Janeiros. Yet despite its massive impact, COPD continues to be underprioritised, underfunded, and undertreated across healthcare systems globally. Pulmonary hypertension (PH) is a frequent and important complication of chronic obstructive pulmonary disease (COPD). The Alliance for Pulmonary Hypertension is a proud member of the GAAPP, the Global Allergies & Airways Patient Platform, and we are delighted to support their awareness campaign for this important observance. This #WorldCOPDDay, we are urging healthcare providers and policymakers to take decisive action by implementing standardized quality measures for COPD diagnosis and management. Consistent care is a core element in improving patient outcomes and ensuring that everyone, regardless of location, age, gender, or economic background, has access to the right care plan and support. COPD should no longer be sidelined. With increased attention, funding, and systemic changes, we can reshape how this disease is managed and elevate it to the public health priority it deserves to be. Join us in the movement to empower patients, advocate for change, and act to improve care. Lend your voice and #SpeakUpforCOPD by visiting speakupforcopd.com to learn how you can make a difference in advancing the future of COPD care. @gaapporg #WorldCOPDday https://lnkd.in/daTT55mk

An article titled "Pulmonary Hypertension: From Therapeutic Nihilism to Multiple Therapeutic Interventions" was published on "Circulation" on November 18, 2024 showcasing the tremendous progress made in the field of pulmonary hypertension. It highlights how far we've come, from no treatments to over a dozen targeted therapies addressing multiple pathways, improving the quality of life and outcomes for patients. It reflects the power of scientific discovery, collaboration, and innovation in overcoming what was once a seemingly insurmountable condition. While challenges remain, the advancements offer hope for continued breakthroughs that may one day transform pulmonary hypertension from a life-threatening disease to a manageable condition. Authors Vallerie McLaughlin and Marc Humbert Read more on the Pulmonary Hypertension Knowledge Sharing Platform at this link https://lnkd.in/e_e9EMER Ai generated photo #pulmonaryhypertension #pulmonaryarterialhypertension #PAH #chronicthromboembolicpulmonaryhypertension #CTEPH #knowledgesharing #knowledgeexchange #patientempowerment #patienteducation #allianceforph #organtransplant #organdonation #transplant #lungtransplant HTaPFrance Stichting Pulmonale Hypertensie / PH Association the Netherlands PH Belgium - Pulmonale Hypertensie vzw AIPI Italian Pulmonary Hypertension Association Pulmoner Hipertansiyon ve Skleroderma Hasta Dernegi Hellenic Community for Pulmonary Hypertension Pulmonale Hypertonie E.V. Ieva Plume PHA Polska PHA Japan Alliance for Pulmonary Hypertension